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Support for families when a child has a disability

  • Action for Children

    We help disabled children and young people gain confidence and independence. We’re there for families when they need us. We’re on hand to help, when families need us. Our 496 local services allow us to work on the ground, in communities. We offer a huge range of support. This includes help for families with disabled children, and services for young carers. 

    Telephone 0300 123 2112 

    Email ask.us@actionforchildren.org.uk 

    Website https://www.actionforchildren.org.uk

  • Contact a Family

    National charity to support families of disabled children, whatever their condition or disability. Provides information, advice and support.

    Telephone 020 7608 8700 

    Helpline 0808 808 3555

    Email info@cafamily.org.uk 

    Website https://contact.org.uk 

  • Peeps HIE

    Peeps is the only UK charity dedicated to supporting those touched by HIE (Hypoxic-Ischaemic Encephalopathy). We offer emotional, practical and financial support, as well as free parent packs for all neonatal units and support for healthcare professionals.

    We provide support to parents, families and friends affected by HIE, raising awareness of HIE.

    You can download our free app through the App Store or Google Play by searching Peeps HIE.

    Telephone 0800 987 5422

    Email info@peeps-hie.org

    Website  https://www.peeps-hie.org

  • The Little Ted Foundation

    The Little Ted Foundation provides support to bereaved families following the loss of a child and those with seriously ill children.

    We provide Memory Maker Grants to help families enjoy a special day out or trip together, Cost of Living Grants for those families with a seriously ill child in hospital for longer than 7 days and Getaways at our beautiful caravan in Snowdonia, North Wales for both bereaved families and those with seriously ill children to have a break from the stresses and strains of everyday life.

    We are also working with The Foil Keepsake Co. to provide the families we support with the most beautiful foil prints free of charge, whether that be scan photos, family hand prints or your little one’s footprints. Please get in touch to find out more about these prints and how to order them.

    For more information on any of the support we offer, please visit www.thelittletedfoundation.org or email info@thelittletedfoundation.org

  • Together for Short Lives

    Together for Short Lives is the UK’s leading charity for children’s palliative care. Through our Family Support Hub and helpline we provide families of seriously ill children with emotional, financial and practical support and advice.

    Helpline 0808 8088 100

    Email helpline@togetherforshortlives.org.uk

    Website https://www.togetherforshortlives.org.uk

  • UK Government

    Your local council can provide help if you have a disabled child, including:

    • short break services
    • holiday play schemes
    • care at home
    • some aids and adaptations
    • financial help, e.g. money towards travel costs for hospital visits

    Your council has a duty to provide these services under the Children Act 1989. Some are free of charge – the council might ask you to contribute towards others. If you think your child may qualify, contact the social services team at your local council.

    Website https://www.gov.uk/help-for-disabled-child